Tales from the Graves': Daily Living with Thyroid Disease, in Their Own Words, by Britney and Ray Robinson
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Tales from the Graves': Daily Living with Thyroid Disease, in Their Own Words, by Britney and Ray Robinson
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"I felt so alone and uninformed when I was diagnosed...I don't want other people to feel that way." - Ashli S., Graves' sufferer If there is any statement that sums up the purpose of “Tales from the Graves'”, this is it. So little is known publicly about this autoimmune disorder, and the disruption it can cause on the lives of everyday people. When it's diagnosed, it's a scary, amorphous unknown specter with an ominous name that implies going to the grave. There are made-for-TV movies for cancer and AIDS, and telethons for muscular dystrophy, so the public is well-aware of these inflictions – not so for autoimmune disorders. According to Medscape in December 2013--a web resource for physicians and other health professionals--Graves' Disease affects up to two percent of the female population, sometimes appears after childbirth, and has a female:male incidence of 7:1 to 8:1. It occurs most often in middle age (most commonly in the third to fifth decades of life), but is not uncommon in adolescents, during pregnancy, during menopause, or in people over age fifty. There is a marked family preponderance, which has led to speculation that there may be a genetic component. Graves' currently affects approximately two hundred million people worldwide, three million in the United States alone. In other words, it's very likely that a great number of people are impacted directly by this disorder (or related disorders, such as Hashimoto's Disease, Thyroid Storm or the Thyroid Eye Disease), or through friends and family, that would be interested in this material. Britney Robinson—co-author of this work, through suffering from Graves' Disease for over 13 years now, has taken great pains to learn everything about this disorder in an effort to minimize its impact on her life and general well-being. In doing so, she joined a support group on Facebook for others to share their experiences--when she joined there were about fifty members. Within a year, that number has blossomed to over a thousand with more people asking to join daily. When she proposed compiling anecdotes into a book, over one hundred and twenty of these members jumped at the chance to share their stories in the hopes of telling others that they are not alone. Realizing the potential of this book to blossom into a huge project, Britney enlisted the aid of her husband, Ray Robinson. Ray is an experienced writer, having put together stories for multiple newspapers and blogs over his career. This guide will begin with a basic description of Graves' Disease itself--its origins, signs and symptoms, and diagnosis. Many of the contributors will give their own experiences in what first clued them or their doctors in. You will hear, straight from their own words, their advice on pursuing a diagnosis, finding a doctor that actually knows what Graves' is (it's more difficult than you would think!), and the tests they experienced to achieve the correct diagnosis. Special attention will be paid to treatment methods people have attempted (with varying degrees of success), how to stay positive in the midst of a complete life upheaval, and dealing with some of the more noticeable traits--such Thyroid Eye Disease (TED) that can occur in those suffering. The truly moving draw of this material comes from reading the stories directly from people dealing with, suffering through, and overcoming this disorder. Many don't mince words--since this is a harsh disease, you will get a real feel for the emotions they pour out. And never the same story twice! You will read REAL tales of lives turned upside down, friends lost and gained, frustration and elation, despair, fear, anxiety and jubilation. "Tales from the Graves'" is an excellent guide for not only those suffering from thyroid diseases, but for their friends and family to gain understanding, and learn what they can do or say to help. You are not alone! 20% of proceeds go to help a thyroid charity
Tales from the Graves': Daily Living with Thyroid Disease, in Their Own Words, by Britney and Ray Robinson- Amazon Sales Rank: #1332305 in eBooks
- Published on: 2015-03-31
- Released on: 2015-03-31
- Format: Kindle eBook
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Most helpful customer reviews
1 of 1 people found the following review helpful. Learn about a devastating condition from real-life sufferers! By Les Edgerton The reality is that most doctors don’t know all that much about Graves’ Disease and other diseases affecting the thyroid. This book is a godsend to sufferers as it not only delivers a lot of solid information about a little-known condition, but also offers up anecdotes from real-life people that will help those afflicted emotionally to deal with their situations, which are largely misunderstood by friends and relatives. A must read for anyone suffering from thyroid disorders as well as their friends and loved ones.
1 of 1 people found the following review helpful. Liked the book By Darlene J. Allen Was nice to read that I am not alone in my struggle with thyroid issues. I do not want my thyroid killed/removed. Have been seeing an ND and taking a tincture to try to resolve hyperthyroid and put my numbers back where they need to be. Happy I bought the book.
1 of 1 people found the following review helpful. Much needed and greatly appreciated! By Victoria B This is a much needed and greatly appreciated book! I especially enjoyed the personal accounts. It gives a real life glimpse of what it is like to deal with Graves' Disease.
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