Luca's sweater: A story about bladder extrophy, by Rachele Nibale, Rosalia Magrofuoco, Maria Vittoria Lanzi, Massimo Di Grazia
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Luca's sweater: A story about bladder extrophy, by Rachele Nibale, Rosalia Magrofuoco, Maria Vittoria Lanzi, Massimo Di Grazia
Download Ebook Online Luca's sweater: A story about bladder extrophy, by Rachele Nibale, Rosalia Magrofuoco, Maria Vittoria Lanzi, Massimo Di Grazia
The bladder extrophy and epispadias is a rare disease that affects 1 / 40,000 live births. Children present at birth a malformation of varying degrees of their in genitals with consequent problems of incontinence and genital organ dysfunction. The treatment of this condition is purely surgical and aims, in part, to achieve urinary continence in some cases, in a natural way. However most cases need to use intermittent catheterization. The second objective is to achieve an aesthetic and functional reconstruction of the external genital tract. In this context of informing and supporting those born with this rare condition the idea to create a story to be used in an educational context, came up. This is to educate on disability and rare diseases. It also represents a very useful means for going into schools where there are children with urogenital conditions, because this teaches the class about diversity. Through the story, and the use of drawings we want to tell a story about a person and not about the disease and to see the person first as an individual and only then the condition they have.
Luca's sweater: A story about bladder extrophy, by Rachele Nibale, Rosalia Magrofuoco, Maria Vittoria Lanzi, Massimo Di Grazia- Amazon Sales Rank: #1744093 in eBooks
- Published on: 2015-03-19
- Released on: 2015-03-19
- Format: Kindle eBook
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Most helpful customer reviews
0 of 0 people found the following review helpful. Good for younger kids By vpoq This book is well written. It is written by an Italian group but the English is still excellent. This story is great for any child who Caths or knows a child who does. It is written for elementary school students.
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